Tobi is typically taken on a "28 days on, 28 days off" schedule. Nathan took Tobi for the month of February only to continue to regrow pseudomonas and a few other swampy bacteria creatures in his sputem culture.
Nathan started up again on Tobi in May and continued to take it during June. Tobi is not fun, it is exhausting for me, my husband, and Nathan but I will continue to administer the Tobi as recommended Nathan's team of doctors.
Each time Nathan goes to a clinic visit they obtain a sputum culture. The respiratory tech inserts a swab into his mouth and fairly deep into his throat until he
If the culture does not grow any bacteria, Nathan will have a one month reprieve from taking Tobi and so will we. Then he will be on the normal Toby schedule "28 days on, 28 days off" until he has 3 normal, non bacteria cultures in a row.
If the culture does grow bacteria, which I have a sneaky suspicion it will, the doctor is "not quite sure what he will do". He will either proceed with yet another month of inhaled Tobi at home or 7-10 days of intravenous antibiotic at the hospital. Dr. A wants to eradicate the pseudomonas and I trust his decision. But...
...I am scared.
Other than all the bacteria and the antibiotics, he has put on a little weight. He is still between the 25th and 50th percentile but getting closer to the 50th. Yippee, I thank God that Nathan has a tremendous appetite. I will keep the food and enzymes coming. But in the meantime, I am still scared about Nathan's first treatment of intravenous antibiotics, which may be sooner rather than later.
After having been at the CF clinic for hours I was exhausted and still had to drive home. An hour long car ride nap re-energized my turbo charged little munchkin. I decided it was best to enjoy some fresh air with Nathan confined to the deck, since he was full of energy and I was completely out of energy. He decided to climb into his pool while still fully clothed, again.
