Wednesday, May 30, 2012

Pediasure Approved

This call couldn't have come at a better time.  It's the end of the month, almost the 1st of next month, still not pay day, and I have had a bad pit in my stomach all day until now.

The insurance company approved the doctor's request to have pediasure covered as medical necessity, sole source of nutrition.  I am grateful.  Still not feeling so great about "stuff" as June 1st approaches but exptremely grateful that Nathan will be able to eat, or drink rather.

I thank you all for your support.  I thank family and friends and complete strangers for sending us mounds of coupons and cases of pediasure to help us provide Nathan with his food for the entire month of May. I am still going to hang onto the coupons because he has been prescribed 3 cans of strawberry pediasure per day and sometimes he drinks more.  I will still buy some but his medical needs will be met through insurance.

Since I am pretty sure my awesome friends have supplied me with more coupons than one family could use (before expiring), if anyone else needs some coupons for pediasure I would be more than willing to share.  Send me an email nathansfight (at) gmail (dot) com with your mailing address.

 

Monday, May 28, 2012

Holiday Weekend Heat Wave

Today, we acknowledge and honor those who have sacrificed so much, sometimes everything, to protect us.

I couldn't put it any better than my good friend Raquel, who is closely tied to the military through friends and family:
Acknowledging our most giving citizens and their families, and honoring those who never returned, were not returned the same as when they left, and the tragedies they and their families have suffered through. Thank you all for your service and sacrifice. God Bless you all...

Amen, thank you.

*****

We enjoyed a relatively low key weekend at home. No fancy barbecues or beachy getaways, just relaxing and working at home, trying to sneak in naps wherever possible, completing projects, and keeping cool every possible way.

I finally finished sewing the binding on Nathan's quilt. It is currently folded at the foot of his bed since Nathan doesn't want to sleep with it (it's not as soft as his "Mickey blankie") but I'll try to remember to take a photo tomorrow after making his bed. I have some extra quit blocks set aside to eventually make two shams but for now there are more important items on my project and to do list.

But here is a quick photo of the kids jumping on the new quilt, just in case I forget to take a proper photo for weeks.



*****

Nathan's almost Annual CF T-Shirt

I need to order them tomorrow.  I have taken sizes on facebook but will be order extras, the "preorders" were mostly to get an idea of how many of each size I need to order.  I was all set on ordering a faded yellow tshirt until I saw Nathan's tshirt today which made me want to switch to a grey tshirt with neon green and blue ink.  Ah, decisions...!!!!  Maybe I will go with two separate orders.  The urgency is for the golf outing on June 13th so maybe I will go with the yellow for the golf outing and then take my time on Nathans 2012 Shirt.

What do you all think?  Here is the yellow haze shirt...



and here is my alternate inspiration...(grey, blue, green)



I'm heavily leaning toward #2, if not for the golf outing shirt (which can be different), then for his annual shirt.

*****

Keeping cool on an oppressively hot weekend

Ice Scream Sunday.  Maybe we will make this a Sunday evening tradition.  Nathan wanted red on his white ice cream.  It was still so hot at almost 5 in the evening that the ice cream was melting faster than we could eat it.  I must take note for future ice cream trips not to lick the dripping ice cream from the bottom of Nathan's ice cream cone.  This photo below was as far as he ate.  As soon as I licked it to stop the drips it was "ruined" and he wanted another red and white ice cream.  Good thing I didn't order a cone for myself, there is always so much leftover between the two kids.


Teagan enjoyed her rainbow sprinkles, the girl knows whats good for her!



And where this boys gets all his energy from is beyond me, I guess from his 3 daily pediasures because it is certainly not from eating any real food.




Climbing the mountain, something I remember doing at the very same ice cream place when I was a little girl minus the Yo Gabba Gabba characters which follow Teagan everywhere.  (Dairy Swirl)



 And a wardrobe change, I don't need to mention the reason.  I am sure it is quite obvious but good thing his mama made him some adorable cloth trainers.  If he had been wearing them to begin with he would still have shorts, socks, and shoes on his feet.



Oddly enough I was actually (accidentally) prepared with a clean pair of shorts and Crocs in the car.


Ice Cream Sunday, followed by in a dip in Grandma's baby pool.  Grandma and grandpa were at a wedding but it was so darn hot and we needed to cool off.  I must remember to renew our pool badges this week.
  

Sunday, May 27, 2012

Closing thoughts - Day 7 Flats Challenge

It is Day 7 2nd Annual Flats and Handwashing Challenge and the final day of the challenge. I’ve been blogging my experiences all week alongside 50-80 other blogs a day.

It's Sunday on a holiday weekend and I'm exhausted. This has nothing to do with diapering decisions but I'm going to skip handwashing today.

Untitled

Using flat diapers is affordable and very doable in my opinion. If we were to use flat diapers as our only diapering method I would have to get my husband on board. He would do it no problem but I would have to either teach him some folds, pre fold the flats or pre stuff the pocket all in one diapers.

In the beginning of the challenge week I was gung ho about washing every evening whether I was in need of diapers or not. Towards the end of the week I started washing in the mornings when I found time. I can see myself getting lazy with the hand washing even though I found the process very easy but if my child needed sanitary diapers, I would make time for hand washing in my daily routine.

I am going to incorporate flat diapers into our pocket diaper stash but will most likely use the washing machine. Since the flats dry quickly, without labor on my part, I would probably skip on the dryer to save energy and money.

Saturday, May 26, 2012

Random Thoughts about Flat Diapering -Day 6 Flats Challenge

Today is Day 6 of the Flats and Handwashing Challenge, hosted by Dirty Diaper Laundry. This year, there are over 450 participants from around the world.

Since I handwashed diapers yesterday morning while the kids were at preschool, my favorite cover (for this challenge) was still hanging to dry in the laundry room. This cover I can reuse all day just wiping the PUL and refastening over a new flat. The only time I need to swap it is when it gets soiled by poo.

So I ended up pad folding and stuffing the flats in pockets all day yesterday and today. Why was my Thirties cover not usable today? Well silly me, I grabbed it off the pants hanger and accidentally dropped it right back into water soaking dirty flats. Teaches me to dry over my slop sink.

We went out to eat dinner at a restaurant last night and both kids were wearing pockets stuffed with flats. Nathan has not been participating in this challenge but he was out of pull ups, I'm still one step away from sewing the leg elastics on his cloth trainers, and he has not been doing great with the potty.

My diaper bag is usually a mess, I toss items in last minute, go through a mental checklist and pray it's all there. Last night was no exception. Moments before leaving I grabbed 3 of my all in one pocket diapers, pulled out the microfiber inserts, grabbed a handful of flats, tossed a bottle of Nathan's enzymes in, and decided I can figure it all out later, stuff as I go.

Today, we had two birthday parties to go to and it was the same deal. Although when it's the weekend and your husband is home, you really need to pre stuff the flat diapers in the pockets because it can be intimidating. Jay used to love and prefer prefolds and snappis but today was the first time he pulled a flat out of the diaper bag. Teagan ended up in a disposable, not his fault, I didn't make it easy for him.

Tomorrow, Day 7, is the last day of the flat diaper and hand washing challenge. I may be speaking early but it has not been terrible at all. I will most certainly be incorporating flats into our permanent stash and doing a very little bit of destashing. This challenge made me realize I have way more cloth diapers than we actually need.

*****

The quicker way to dry cloth diapers and covers

Squeeze as much water out by hand. I don't like to twist my covers because I hate replacing elastics and don't want to stress them any more than they need (stretching by baby waist and legs).

Lay flat on an absorbent bath towel.

Drying diaper covers 1

Roll towel up like a burrito.

Drying diaper covers 2

Stomp/walk all over the towel.

Drying diaper covers 3

Unroll towel and hang covers/diapers

Friday, May 25, 2012

Days 4 and 5 Flats Challenge

Today is Day 5 of the Flats and Handwashing Challenge, hosted by Dirty Diaper Laundry. This year, there are over 450 participants from around the world.

I honestly was too tired yesterday to handwash my flats or blog. I had plenty of clean and dry flats for today so I figured I would knit a hat and watch Law and Order until I couldn't keep my eyes open anymore.

I spent most of the day outside with my kids playing and that fresh air knocks you out, me more so than the kids.

Day 4's writing prompt - Whatcha Think About Handwashing?

I think I really like it.  When using my washing machine to wash my pocket diapers and inserts I like to put it off as long as possible so I can wash a decent sized load of diapers.  Sometimes this doesn't work to my advantage because the microfiber inserts really need to go through two very hot dryer cycles before they are truly dry.  If I run the dryer in the evening once they are still damp in the morning.  Meaning, I have to use more disposables and I have to sit around stuffing the pockets.

This week, I don't feel guilty handwashing and hanging one flat diaper and cover.  To me its the same as handwashing 10 flat diapers and multiple covers.  The flat diapers cost much less so I can have alot more in my diaper stash.  And even though they drive in several hours, I don't feel like I'm watching the clock wondering if they will be dry by the next diaper change because I have enough flats for probably three days.

Yesterday I tried a pad fold inside the Thirsties cover which is basically just folding it into a rectangle and laying it inside the cover.  It worked fine but Teagan pooped in it and the pad fold doesn't do as good of a job as the origami fold in keeping the poo off the gussets of the diaper cover.  So up until day 4 I got by with only one diaper cover.  If I had done an origami or other fold I am sure I could have still used one cover.  I used an additional two covers yesterday and since I stuffed pockets with pad folded flats, they were a one time use sort of deal.

This morning, I hand washed the flats and covers used yesterday.  I'm not afraid to get dirty so I just use bare hands to wash.  It really only takes me 5-10 minutes at most and I described more about my handwashing routine in the Day 3 post.

So I've tried the pad fold and the origami fold, today I am going to try a few of the other folds: diaper bag fold, jo fold, kite fold, etc.  I'm very pleased with flat diapers so far.  They are very absorbent and very trim and I would have no problem letting Teagan go coverless around the house if I had no clean covers and if I had a good fold secured properly.  She does like to mess with and try to remove the diaper when there is no cover.

Right now she is at preschool with her brother so she is wearing her first daytime disposable diaper of the week.  When she comes home, back to flats.

I'll update with photos, they are currently importing.  I filled up the memory on my iphone already (actually this is the third of fourth time.  Too many photos).

Thursday, May 24, 2012

I love his smile



...and I'm not washing diapers tonight. Good thing I have clean/dry ones ready for tomorrow because I am pooped from all the fresh air we got today. Humid, drizzly, breezy, overcast fun outside.

Wednesday, May 23, 2012

Using Flat Diapers | Day 3 Flats Challenge

I am taking part in the Second Annual Flats and Handwashing Challenge hosted by Dirty Diaper Laundry.  For 7 days I will be using only flat cloth diapers and handwashing them in an effort to prove that cloth diapering can be affordable and accessible to all.  You can learn more about the rules and why this challenge was started by visiting the announcement post.  This year there are over 450 participants from all over the world!

This challenge has really opened my eyes as to how easy flat diapers are to use.  Not only folding them and putting them on but also washing them.  It really has only been taking me 5 minutes of manpower to wash and hang them.  After removing a soiled diaper, I discard solids in toilet and give the diaper a quick rinse, which seems to save me time in the evening when I go to wash them.  I have to wash my hands after changing the diaper anyway so a quick rinse isn't a very big deal.

Seeing that I had 7 clean and dry diapers hanging in my laundry room I didn't go crazy wringing out my clean diapers, just one wringing/squeeze and clipped onto pant hangers.

I've been using the origami fold which is working really well for Teagan.  No leaks, no blowouts, just perfect and ABSORBENT!  I love that the Target Flour Sack Towels are larger than my other flats.  It makes putting them on so much easier.  And last night after Teagan ran through the sprinkler at my father's house, wetting the one and only cover I brought with me, I decided to just snappi a flat on her without cover.  I really think if she would leave the snappi alone she would be fine without cover.  The flats really are absorbent.



I'm also completely in love with our utility "slop" sink.  I always liked having a sink in our laundry room but I just fell in love all over again.

Washing cloth diapers

Before putting Teagan to bed, I filled the sink just high enough to cover the flats and cover. (I have only used one cover thus far - no leaks, no need to change it)  After nursing her and laying her down, I went back to the sink and drained the water.  Hot wash, cold rinse, squeeze water out, hang up...literally 5 minutes.

Drying cloth diapers

And what you see above - the diapers and covers I used during Day 2. One flannel receiving blanket that my snappis don't want to fasten, 4 Target Flour Sack Flats, and 2 Gerber Flats (doubled as 1 diaper). 6 diapers and 1 cover.

Tuesday, May 22, 2012

My Supplies | Day 2 Flats Challenge

I am taking part in the Second Annual Flats and Handwashing Challenge hosted by Dirty Diaper Laundry.  For 7 days I will be using only flat cloth diapers and handwashing them in an effort to prove that cloth diapering can be affordable and accessible to all.  You can learn more about the rules and why this challenge was started by visiting the announcement post.  This year there are over 450 participants from all over the world!

Day 1 Recap

Yesterday went well.  I used about 6 flats during the day and I never noticed.  Teagan was happy as can be, not once uncomfortable.  We even made a trip to Chuck E. Cheese.  She didn't soil any of the diapers either only urine so washing was a piece of cake.  I filled our slop sink with hot water and let them soak during dinner.  After dinner I drained water and filled again with hot water this time adding my detergent.  Then I agitated, swishing back and forth, squeezing out, etc.  Then I drained the water once again.  This time I filled the sink with cold water.  As the sink was filling I rinsed each diaper under the tap and then agitated them again.  Finally I drained the cold rinse water and squeezed each flat diaper, the wet/dry bag, and cover.  To dry I hung on the pant hanger clips and let them dry overnight.  By the morning they were all dry and ready for Day 2 (along with the other flats I never used Day 1).

My Supplies

Diapers:
10 - Gerber Birdseye Flats (doubled)
8 - Target Flour Sack Cloths (MY FAVORITE! And only $1.00 each)
3 - 30x30 Flannel Receiving Blankets

Flat diapers

Covers:
1 - Thirsties Duo Wrap Size 2
(This is the only cover I used Day 1 because she didn't soil it.  If she soils this cover I will grab one of my pocket covers, bumGenius 4.0 most likely)

Accessories:
2 - Snappis on hand but mainly using 1.  The extra Snappi is for when I can't find the primary Snappi

Washing:
Biokleen Bac-Out when necessary. (Thanks Lindsay, this stuff is awesome!)
Homemade diaper detergent (equal parts washing soda, borax, and oxyclean)
Laundry room slop sink for soaking, washing and rinsing
My hands!

Hand washing flat cloth diapers

Drying:
Pants hangers with clips in my laundry room.  We live in a townhouse with a cranky homeowners association so no line, or outside drying.  I do lay covers and inserts flat on my deck when I occasionally sun my diapers.

In action:

Flat cloth diaper in action

Monday, May 21, 2012

Why Flats? Day 1 Flats Challenge

I am taking part in the Second Annual Flats and Handwashing Challenge hosted by Dirty Diaper Laundry.  For 7 days I will be using only flat cloth diapers and handwashing them in an effort to prove that cloth diapering can be affordable and accessible to all.  You can learn more about the rules and why this challenge was started by visiting the announcement post.  This year there are over 450 participants from all over the world!

Why am I participating in the challenge?  There are several reasons I am choosing to use flats this week.  The most basic reason, I am always up to a challenge.  But most importantly, money is tight.  We've always been a sometimes cloth/sometimes disposable family.  I love using cloth but I also quite frequently fall back on disposable diapers.  Teagan wore mainly cloth diapers from birth until Nathan was admitted to the hospital.  I was thrown into a whirlwind of being overly busy, spending alot of time traveling back and forth to the hospital and then when we brought him home, I was counting the hours between his IV infusions and airway clearance treatments.  I had no time for washing diapers let alone for washing our clothing.

I would say we cloth diaper at least 50% of the time.  Nathan is well on his way to being toilet trained and when I am home or out and about with the kids I usually use cloth.  Nathan wears homemade cloth training pants, regular cotton underwear, and disposable pull ups on the days I just don't have energy.  I am not including him in the flats challenge because he is almost for and very set in his routine.  Teagan wears mostly pocket cloth diapers.   If I run out of clean cloth diapers then I use disposables guilt free.  When she goes to preschool/daycare she wears a disposable.  I feel comfortable choosing whatever diaper works at the moment but love that I can save alot of money by adding cloth diapers into our daily diapering life.

When I read the article on how some families would try to reuse disposables to save money I was astonished.  I was immediately up to the flats and handwashing challenge.  To be honest I am more up to the flats portion of the challenge than the handwashing portion because I love my washing machine.  But the point is you can diaper cheaply without having a washing machine.  The flats part will be a piece of cake, with my flats costing between $1-$2.50 each, I know they are affordable.  The true test for me will be the ease of handwashing.

This is what she is wearing right now:



2 Gerber Birdseye Flat Diapers, Origami fold, Snappi (Dayglo neon yellow, size 2), Thirsties Duo Wrap Cover

She has been wearing this flat for about an hour, I will probably feel for wetness after publishing and change if necessary.  She usually stays dry for 2-3 hours.

Check out everyone else's reason for participating!

 

 

Wednesday, May 16, 2012

Getting read for the flats and handwashing cloth diaper challenge

I didn't participate in the challenge last year.  Actually I didn't participate in much last year.  Nathan had gotten out of the hospital in March and Teagan was on the move.  But the 2nd Annual Flats and Handwashing Challenge is beginning Monday, May 21 and I am getting prepared to join in. While getting ready for the challenge, I realized how inexpensive it is to cloth diaper using flats.  I should have been using flat diapers all along!  Which is actually what this challenge is about, educating the public about low cost diapering options. A little background on the challenge from Kim at DDL:
The Flats and Handwashing Challenge 2011 was an idea that came about after numerous articles referenced the practice of reusing disposable diapers.  Families with no money for new diapers were scraping out the solid contents or using a hair dryer to dry the diapers for reuse.  Not only is this unsanitary but it is also extremely dangerous.  The media neglected offering the suggestion that families use cloth diapers.  Why?  Who knows.  {read the original article} It was my personal mission to educate others that, although not ideal, hand washing the inexpensive flat cloth diapers was an option to families who had no other way to diaper.  No baby should have to suffer when there are ways to diaper for less than $50.00.

We usually use pocket diapers, they are convenient, but they are more expensive than flat diapers.  My first purchase for the challenge was a package of 10 Gerber Flat Birdseye Cloth Diapers for $12 at Walmart.  I may have to double up on these for Teagan who is now 20 months old but one flat could be workable. (Total spent $12, $1.20 per diaper). Then I pulled out some old 30x30 flannel receiving blankets.  I am guessing most people have extra receiving blankets laying around but if you had to buy a package, I estimate a pack of 4 flannel receiving blankets would cost $10. Here is a pack of  5 receiving blankets for approximately $12-13 including shipping.  I like those prices.



I paid nothing for the receiving blankets that I will be using since I had them already but I will estimate $2.5 per flannel receiving blanket turned cloth diaper.  I like the receiving blankets, they are a little thicker than the birdseye gauze and alot softer.  The birdseye flats took all morning to hang dry in the laundry room and I am sure the flannel receiving blankets will take a bit longer.  I will be using 3 receiving blankets in addition to the 10 birdseye flats which I will be doubling so that brings me to 8 diapers.  I'd say that's enough for one day of diapering.

I will be handwashing and hang drying everyday so I needed a few more flats to bridge the gap. I bought two 4 packs of the Target Flour Sack Towels (in the kitchen section).  Each 4 pack is $4 and they are 30x30 just like the receiving blankets and the birdseye flats.  They seem to be a tiny bit thicker than the Gerber and maybe even a little bit softer.  I may or may not have to double them on Teagan.  Since she is now more of a toddler than a baby, she needs the extra cloth around the hips.  Otherwise, the Snappis feel like they are going to poke through to her skin.  (Total spent $8, $1 per flour sack towel flat diaper)

Other than the flats, I only purchased another two pack of Snappi Cloth Diaper Fasteners. I had size one already but needed size two now that Teagan is bigger. (Total spent $7.25, a little over $3.50 per Snappi which should be more than enough - I will probably only use the neon yellow Dayglo Snappi anyway.



I will be using covers that I already have in my cloth diaper stash with the exception of a new Thirsties Duo Wrap Size 2.  I need to destash my size 1 Duo Wraps.  If I ever need a size 1 again I will just buy them used from someone.  I've seen cheap one size cloth diaper covers for $5 to $6 per cover that could easily last from birth to potty training.  These covers can be rinsed and air dried between uses.  I could very easily survive with 3 if I had too.  So I would say I am all set for the challenge.  $20 spend on flats, $7 spent on Snappis, $13 spent on cover - $40 dollars.

Many participants will be using homemade camp style wash buckets using 5 gallon buckets with lids and a new plunger with holes drilled through it to agitate the diapers but I will just be washing them for the week in the bathtub.  I have no use for a camp style washing machine at this point and can't justify the expense to make my life easier for the week.

Disclosure: I purchased all the items needed for the Flats and Handwashing Challenge.  Post contains affiliate links.

Monday, May 14, 2012

untitled

I don't have any updates on the pediasure situation.  The durable medical company said WIC usually covers pediasure until the age of 5 if accompanied by a letter of medical necessity.  We don't have WIC anymore.  They (durable medical) put the order through and are in the process of trying to get it covered by insurance.  Thank you to everyone who mailed me pediasure and/or pediasure coupons, this is a tremendous help.

I am sitting here very tired today, burning discs for clients, loading image galleries, responding to emails, diapering children, yawning, stomach grumbling...  This weekend was not very restful for me.  I was pretty much on the go the entire time, communions to photograph, birthday parties to attend, dishes to do, floors to clean.  I slipped up on my diet big time, carbohydrates and comfort foods are extra tasty in times of exhaustion although they just make things worse.  So in anticipation of getting back on track eating healthier foods this morning, I binged on Oreo's last night.  And Teagan hasn't been feeling well, irritable and now coughing.  I wish my kids would sleep more, both at night and naps during the day.  The near constant whining, crying, and overtired behavior is killing me.

Wednesday, May 9, 2012

Orchestrating for Pediasure

As I briefly mentioned before, we've been having issues with purchasing Pediasure out of pocket.  The bottom line is: Nathan currently needs Pediasure.  All effort to transition him to a diet consisting primarily of solid food is in vain.  And I'm not messing around any more with cutting him off of Pediasure or battling with him to hate food even more.  The few months that he was on whole milk alone, his weight dropped.  We decided that Pediasure is what's currently working for him.  If he doesn't eat and get the amount of calories/nutrients he needs then we are going to be pouring Pediasure into a feeding tube.  If he is willing to drink it, we may as well let him.  It won't be like this forever, he will wake up one morning and eat and as long as he is getting his nutritional needs met by the pediasure, I can let him enjoy trying food or not trying food at his own pace, without any added stress.

But dang, Pediasure is expensive.  After receiving some coupons from a nearby friends I thought maybe I could ask on facebook if anyone else would save coupons for me.  I posed this question just two days ago and I've already received at least 10 coupons in the mail from facebook friends across the country and have other friends sending more (one friend found 28 coupons for me!).  I have also been blessed with some surprise cases of pediasure at my doorstep.  We have been blessed with many supportive people in our lives and let me tell you, as soon as we are able, we have a lot of paying it forward to do because that's what we are all about - helping people near and far when in need.  So to my friends and famliy (and friends of friends, friends of family, family of friends - confused yet?), whether I know you in real life or whether I've met you through cyberspace, I want to say thank you for being a part of my life and for your support.

Now at the same time, I've been working tirelessly to negotiate between the appropriate parties on getting Nathan's Pediasure covered by insurance and today I made a little progress.  I left a message for his health insurance case manager on Monday morning but did not hear back.  I emailed the social worker at his respiratory clinic to enlist more help because I'm feeling particularly overwhelmed.  She forwarded my message to the nutritionist and the nurse.  The nurse emailed me asking to find out some informatioin from case manager, the person whom I was waiting to hear back from.  Road block.  Initially I thought I would just wait but then I thought it would be better to just become annoying.  I called again, this time the case manager answered!!!  So now I have the Durable Medical Equipment (DME) company, the information the pulmonologist needs to send (prescription and letter of medical necessity)!  This entire process may take 3-4 weeks apparently so again I REALLY appreciate the coupons and pediasure donations.  Thank you so much and of course I will keep you all updated on any progress I make.

*****
Photo Dump!

photo dump 5-9-12

Tuesday, May 8, 2012

Flats and Handwashing Challenge

I've never used flats in my diapers before, we really loved prefolds but sold our prefold stash when Teagan grew out of the red edge GMD prefolds.  At that point Teagan took over our entire pocket stash (mostly BG 4.0, Thirsties, and Happy Heiney's).

So for the challenge, I picked up a 10 pack of Gerber prefolds and will cut some old flannel receiving blankets to a square.

Because if life isn't interesting enough.



 

Monday, May 7, 2012

little golfer

Nathan Golf-0054

Life is pretty busy lately, in a good way.  Although I'm feeling exhausted, it is all for good things...working for my kids, working for my business.  At the same time, I am feeling alot of anxiety but I am trying not to worry about tomorrow.

Ever since Nathan's last clinic visit, when he lost a little weight, I switched him back to Pediasure from whole milk.  This expense is killing us, and I finally found the phone number to Nathan's case manager so I reached out to her this morning and hopefully I will reach some sort of solution by tomorrow.  I feel terrible limited him to 3 bottles, or $5 worth, of Pediasure a day.

Also, my dad is hosting a golf outing to benefit Nathan.  It is the 1st Annual Golf Outing and will be June 13th, so if you are in the area and would like to golf, attend dinner, or contribute/help out I would love to see you there!

 

Saturday, May 5, 2012

Keeping it all together

...or failing miserably.

I've been told that the full moon tonight will be a supermoon, appearing unusually large and bright. I'm blaming my children's behavior on this occurrence. Although there may be no correlation between lunacy and lunar phases, my mother in law, a psychiatric nurse begs to differ. I'm praying with the passing of this full moon, so passes the craziness I've seen in my children all day today.

*****
Keeping track of Nathan's medications and treatments - my mind is overloaded with things I need to do as a homemaker, things I need to do for my business, things I need to do to keep Nathan healthy.

All CF parents do what works for them. Most would say administer airway clearance treatments upon rising in the morning and in the evening. Well on preschool days, that does not work for me. I normally do treatments on these days as soon as I pick Nathan up from preschool.

Preschools starts at 9 am literally one mile from our house. There is no way I would ever make it on time. I have no clue how it will work once he goes to school everyday. But I'm not going to worry about that now. For the time being, I do treatments after preschool two days a week. He still gets the airway clearance twice a day...except for yesterday.

Yesterday, Nathan's aunt and uncle were in town and asked if they could surprise the kids by picking them up from preschool. It didn't even occur to me that I had yet to give Nathan his morning dose of antibiotic or airway clearance.

Things happen, I'm human.

Once I realized, still not home, I called Jay and asked him to grab his equipment and medications on his way over from work. Jay's brother and sister in law live in Virginia so it's not often they visit.

After dinner we gave Nathan his two evening antibiotics, his antacid, his Zyrtec, and went straight into nebs and vest. He took his two puffs of xopenex and after starting the vest, Jay realized he forgot the hypertonic saline for the nebulizer. Nathan was very upset, yelling "I'm supposed to hold my neb!". He did not like his routine changing and he just does not want to do his vest without his neb.

*****

We forgave ourselves and then come morning we could not find his puffer or his Bactrim. A terrible start to the day. We proceeded with treatments minus those two.

Now even with the super moon seemingly against us, he will get an entire airway treatment tonight, soup to nuts.

*****

What really gets to me is how much responsibility is on our shoulders. My number one responsibility is taking caring of Nathan's medical needs. It's the reason I resigned from teaching but as you know the one income wasn't cutting it, hence the birth of CMS Creative Photography. Along with my business came more responsibility and needless to say I'm still learning how to keep it all together.