Comments on Nathan's Fight: post clinic turbo charged munchkin

My son (also with CF) had to be in the hospital fo...

2009-07-03T18:59:21.968-04:00

My son (also with CF) had to be in the hospital for a tune up before his sinus surgeries. He was close to 2 years old and I was scared too, but it actually was not too bad and they did really help.

I was so nervouse about the first IV meds too. Ma...

2009-07-02T16:56:21.721-04:00

I was so nervouse about the first IV meds too. Maddie had hers at 6 months and we saw major improvements. I just knew we were going to get on that slippery slope of being in the hospital all.the.time. But it did wonders and she hasn't been on inhaled TOBI since and she is 5 and half now!! She has been in the hospital twice in the last year but those were both very good visits as well. I know it is scary giving your kids all those meds but for CF kids the alternative is worse. I will be thinking about you! I hope his cultures come back great!
Amy

Nathan just go me giggling when I saw him in the p...

2009-07-02T16:30:47.179-04:00

Nathan just go me giggling when I saw him in the pool...fully clothed. It is the simple things that put a smile on this face :) Nathan is such a fighter and continues to fight CF head on. Yes he may have to take daily meds to keep him going, but he is definatly movin' and grovin' each and every day.

When I read you blog updates, I am AMAZED at your strength and endurance through fighting CF. No you don't have it, but your fight for Nathan's best care is AMAZING!
Hang in there!!!
~Elyse

Sorry to hear about all of your expieriences with ...

2009-07-02T13:52:49.530-04:00

Sorry to hear about all of your expieriences with the pseudomonas... so far we have been very blessed to pass all our swab tests... Your little guy is so little, just curious how old he was when he first tested postitive for the bateria??? If you dont mind me asking... Praying your results come back good....

I will pray that the tests come back with Great re...

2009-07-02T00:08:38.218-04:00

I will pray that the tests come back with Great results! You all deserve it!... lets get the lil ones together next week!

My eyes filed with tears as I read this post. I a...

2009-07-01T22:33:51.879-04:00

My eyes filed with tears as I read this post. I am so sorry that you are struggling with this. I don't understand CF, but I do understand wnating your baby to stay out of the hospital and being scared when you know they may have to go in. I will keep praying. God bless.